The latest ADDN Newsletter (Issue 8) is now available. A big thank you to all ADDN centres for your feedback and continued patience. We discuss the next upload, welcome onboarding sites, highlight current projects, and celebrate the most recent publications involving ADDN data.
To read more about what’s been happening in ADDN, click this link to open the April 2023 issue.
For previous issues, see addn.org.au/newsletters.
The ADDN Publication and Data Access Policy was recently updated by the ADDN Project Management group. The revised version is now approved and will soon be circulated to members of the ADDN study group. It can also be downloaded and saved for your records by clicking the following link:
The latest ADDN Newsletter is here! A sneak peek into Issue 7:
It seems that another year has gone by in a flash. Since our last newsletter in June 2021, and despite the continued impact of COVID-19, ADDN has continued to grow, with 10 additional centres joining ADDN.
You can read more about this exciting new period in this newsletter, including progress made towards the expansion of CGM evaluation in pregnancy, and about our recent publications including collaborations between ADDN and other international diabetes registries.
To read more about what’s been happening in ADDN, click this link to download Issue 7.
If you’d like to look at our previous issues, click the following link: addn.org.au/newsletters.
The Australian Commission on Safety and Quality in Health Care (the Commission) has developed and launched a register listing all clinical registries in Australia, called the Australian Register of Clinical Registries. ADDN has been listed here under Registry ID ACSQHC-ARCR-467.
Link to the register below:
https://www.safetyandquality.gov.au/australian-register-clinical-registries
Join us for the ADDN Symposium 1-2pm AEST, 12 August 2021 at the virtual Australasian Diabetes Congress 2021.
Click here to view ISSUE 6, June 2021 ADDN Newsletter
We congratulate Prof Peter Colman on being awarded the ADS Jeff Flack Diabetes Data Award for 2020. This is great recognition for Prof Colman to improve care for diabetes patients through the use of data and research. Prof Colman worked with BioGrid Australia to first establish the BioGrid Diabetes Clinical and Research Database at the Royal Melbourne Hospital and is now used across a few diabetes centres in Australia as the clinical system to manage the care and treatment of diabetes patients. Prof Colman has been instrumental during the expansion of ADDN to include data for T1D for adults.
ADDN will be having a symposium during the ADC 2020 at 1.30pm, 12 November 2020. This virtual event will showcase the activities and research that ADDN has been undertaking since it was established in 2012.
If you are attending this year’s virtual ADC conference, we invite you to listen to our panel of speakers and take the opportunity to ask questions during the ‘live’ Q&A session at the end.
You can access the symposium’s on-line program here.
We congratulate the Endocrinology Service, the Royal Melbourne Hospital in Melbourne and the Department of Diabetes and Endocrinology, Westmead Hospital which were recently ranked in the Newsweek/Statista top 100 for specialised endocrinology centres worldwide. Both services are active participants in ADDN’s benchmarking activities where they are able to compare patient outcomes among other similar diabetes services. Ranking is based on peer recommendations from a global survey of medical professionals in specific areas of expertise. See rankings and full list of hospitals here.
Prof Maria Craig has been appointed as the ADDN Medical Director. Prof Craig commenced in this new role on 14 September 2020 and will lead ADDN in to the next phase.
Click here to view ISSUE 4, June 2020 ADDN Newsletter
ADDN was present at the JDRF Type One Summit to provide information about the role of the registry and how data collected on T1D will help improve clinical care and outcomes. Read more
The ADDN Mobile App enables users to compare their glycaemic levels (HbA1c) and body weight (BMI) with others from the same age group who have T1D.
Try downloading it from the App Store by searching for “ADDN”.
Two of the ADDN Principal Investigators – Prof Timothy Jones and Prof Maria Craig gave presentations on studies utilising the ADDN data:
Adolescents and Young Adults with Type 1 Diabetes Across Australia and New Zealand: Glycaemic control is inversely associated with age at diabetes onset.
Impact on glycaemic outcomes of funding Continuous Glucose Monitoring for youth in Australia.
Suboptimal glycaemic control in Australasian patients with Type 1 Diabetes across the age spectrum, especially young adults.
Prof Peter Colman presented how data in the ADDN Registry is being used to benchmark the quality of care provided at participating ADDN diabetes centres.
ADDN responded to a call to provide input into the implementation plan for the Australian National Diabetes Strategy 2016-2020. The plan was endorsed by AHMAC in December 2017 where ADDN is acknowledged as a platform that allows sharing of clinical databases for clinical research on diabetes care.
The inaugural T1D Summit was organised by JDRF Australia to connect patients living with diabetes, parents and carers with current research and clinical trials funded by JDRF. The Keynote address was given by JDRF’s Aaron Kowalski on the research progress in type 1 diabetes. ADDN was present to promote awareness that many of the research conducted could be underpinned by the ADDN diabetes patient registry.
We congratulate the Department of Diabetes and Endocrinology at the Royal Melbourne Hospital which recently achieved the National Association of Diabetes Centres (NADC) Centre of Excellence accreditation awarded to applicants who have met the rigorous criteria as assessed by the NADC Accreditation Committee. The department was particularly outstanding in the areas of training, education and supervision, research, collaboration and engagement, diabetes foot management and diabetes technology.
Pictured is Katie Marley, Manager Diabetes Education and Professor Peter Colman AM, Director Diabetes and Endocrinology at the Royal Melbourne Hospital.
ADDN held an information session at the ADS ADEA Annual Scientific Meeting in August 2017 in Perth. This annual Scientific Meeting was attended by more than 1,000 delegates including patients and consumers involved in diabetes care and research.
The ADDN mobile app is available to be downloaded from the iTunes Appstore. Use this app to compare your glycaemic levels (HbA1c) and body weight (BMI) with children from your age group who also have type 1 diabetes. This app compares your HbA1c and weight to the average HbA1c and weight of children and teens who have their diabetes information stored in the ADDN Registry. You enter your details to get feedback on how you compare with the ADDN group, and know whether to contact your diabetes team to help you aim for and reach a level of diabetes control that is right and safe for you, or help you towards reaching and maintaining a healthy weight. Give it a try!
